Consent & Privacy Policy
The Forgetting Project studies are being conducted by Goldsmiths University of London. The lead researcher is currently PhD student Terry McGibbon, under the supervision of neuropsychologist Dr Ashok Jansari.
Current Study Description
People's ability to learn and recall new information varies with age, and is influenced by brain related conditions such as epilepsy and Alzheimer's disease. This study aims to identify how memory varies within the general population. Participants are required to memorise pairs of words, and recall them at two later times. This study will not cause any physical or mental harm, so you will not experience any distress whilst participating in this study.
Data Confidentiality
There is complete anonymity and confidentiality of the data, which will be kept safe electronically. Your personal details such as age and gender will be personally unidentifiable and only seen by the researchers conducting the study. This information will not be shared with any other organisation, and will not be included in any report or other publications arising from the study, and only the results will be kept after the study is completed.
Right to withdraw
You are not obliged to take part in this study and should not feel coerced. You are free to withdraw at any time. Should you choose to withdraw from the study you may do so without disadvantage to yourself and without any obligation to give a reason.
Contacts
If you have any questions or concerns about how the study has been conducted, please contact Terry McGibbon (tmcgi001@gold.ac.uk) or Dr Ashok Jansari (a.jansari@gold.ac.uk)
Disclaimer
We ask participants to agree to the following disclaimer:
I am aged 16 or over.
I have the read the information relating to the above research study, which has explained the nature and purposes of the research, and the procedure I will be involved in.
I understand that my involvement in this study, and particular data from this research, will remain strictly confidential. Only the researchers involved in the study will have access to identifying data. It has been explained to me what will happen to data once the research study has been completed.
I hereby freely and fully consent to participate in the study which has been fully explained to me. Having given this consent I understand that I have the right to withdraw from the study at any time without disadvantage to myself and without being obliged to give any reason. I also understand that should I withdraw, the researcher reserves the right to use my fully anonymised data in the write-up of the study and in any further analysis that may be conducted by the researcher.
Storage of email addresses in compliance with GDPR
Would you would like a personalised report showing your results and how these compare to others who have participated in our study? If so, then please email Terry McGibbon (tmcgi001@gold.ac.uk) providing your unique participation code. We will only use your email to provide your individual report, and to notify you of future studies that might be of interest to you.
If you decide to provide us with your email address it will be stored separately from the rest of your anonymised data, in compliance with (GDPR) rules. It will not be shared with anyone else, and you can ask to be withdrawn from our contact list at any time. You can see our full GDPR statement below.
The General Data Protection Regulation [GDPR] and Goldsmiths Research: guidelines for participants
Please note that this document does not constitute, and should not be construed as, legal advice. These guidelines are designed to help participants understand their rights under GDPR which came into force on 25 May 2018.
Your rights as a participant (data subject) in this study
The updated data protection regulation is a series of conditions designed to protect an individual's personal data. Not all data collected for research is personal data.
Personal data is data such that a living individual can be identified; collection of personal data is sometimes essential in conducting research and GDPR sets out that data subjects should be treated in a lawful and fair manner and that information about the data processing should be explained clearly and transparently. Some data we might ask to collect falls under the heading of special categories data. This type of information includes data about an individual’s race; ethnic origin; politics; religion; trade union membership; genetics; biometrics (where used for ID purposes); health; sex life; or sexual orientation. This data requires particular care.
Under GDPR you have the following rights over your personal data:
- The right to be informed. You must be informed if your personal data is being used.
- The right of access. You can ask for a copy of your data by making a ‘subject access request’.
- The right to rectification. You can ask for your data held to be corrected.
- The right to erasure. You can ask for your data to be deleted.
- The right to restrict processing. You shall have the right to obtain from the controller restriction of processing of your data under certain circumstances (e.g., where accuracy of the personal data is contested; see Art. 18 GDPR).
- The right to data portability. You have the right to get your personal data from an organisation in a way that is accessible and machine-readable. You also have the right to ask an organisation to transfer your data to another organisation.
- The right to object. You have the right to object to the use of your personal data in some circumstances. You have an absolute right to object to an organisation using your data for direct marketing.
- How your data is processed using automated decision making and profiling. You have the right not to be subject to a decision that is based solely on automated processing if the decision affects your legal rights or other equally important matters; to understand the reasons behind decisions made about you by automated processing and the possible consequences of the decisions, and to object to profiling in certain situations, including for direct marketing purposes.
Please note that these rights are not absolute and only apply in certain circumstances. You should also be informed how long your data will be retained and who it might be shared with.
How does Goldsmiths treat my contribution to this study?
Your participation in this research is very valuable and any personal data you provide will be treated in confidence using the best technical means available to us. The university's legal basis for processing your data as part of our research findings is a "task carried out in the public interest". This means that our research is designed to improve the health, happiness and well-being of society and to help us better understand the world we live in. It is not going to be used for marketing or commercial purposes.
In addition to our legal basis under Article 6 (as described above), for special categories data as defined under Article 9 of GDPR, our condition for processing is that it is “necessary for archiving purposes in the public interest, scientific or historical research purposes or statistical purposes”.
If your data contributes to data from a group then your ability to remove data may be limited as the project progresses, when removal of your data may cause damage to the dataset.
You should also know that you may contact any of the following people if you are unhappy about the way your data or your participation in this study are being treated:
- Goldsmiths Data Protection Officer – dp@gold.ac.uk (concerning your rights to control personal data).
- Chair, Goldsmiths Research Ethics and Integrity Sub-Committee - via reisc@gold.ac.ukreisc@gold.ac.uk, REISC Secretary (for any other element of the study).
- You also have the right to lodge a complaint with the Information Commissioner’s Office at https://ico.org.uk/make-a-complaint/
This information has been provided by the Research Ethics and Integrity Sub-Committee with advice from the Research Services and Governance and Legal Teams. Version: 13 August 2018